There has been, for many years, discussions, requests, even what could be seen as begging from may of us diagnosed with dementia to use respectful language. That means, respectful from our point of view, not those who are not diagnosed with dementia.
Of course, people with dementia do suffer some of the time, but we did before dementia too, but were not then termed as sufferers all the time. Some individuals with dementia may wish to refer to themselves as sufferers, and of course, that is totally their right, but I believe it is not ok to do so publicly, as it infers that we are all ok with that negative label.
I repeat: “Please don’t call us sufferers”
During the recent ADI2014 conference, it was apparent…
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