Posted in Caregiving, Dementia, International Campaigns, International Policies, Research & Best Practice

The Link between Hoarders, Brain Damage & the Research

In Asia, you would usually see a case about a hoarder which is a common reference for a person living in severe domestic squalor. In most cases volunteers would have gone in to help clean up the home only to have it return to the same steady state a few months after.

Image from Chinanew.com (Elderly resident in Qing Dao accumulates items that blocks the apartment entrance.)

With our high-rise living 2 recent cases caught my eye, a 78-year-old lady sleeping in a stairwell in Singapore for 3 months as a result of the clutter in her home and an apartment in Shanghai, whose entrance has been completely blocked as a result of a single resident’s collection of items.

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Image from The New paper (TNP, Singapore)

A lot of the time, these situations leave us confused, especially after a big clean up, they continue to build up and reside in unsanitary and highly dangerous living conditions. It is not uncommon for colleagues or friends to say that the individual was well articulated and seemed well presented. So why do they continue to live in conditions that endanger their lives and others?

In a study by Snowden et al. (2012), one in 700 elderly living alone in the community may be living in these conditions. Research by Lee et al. (2014) in Australia found that people living in squalor were mostly living with brain damage that is impacting their ability to accept that their living condition was highly unacceptable in society. To answer the question about the well-presented individual, their research have also found that most of these individuals score well on the Mini-Mental State Examination (MMSE) indicating a level of capacity resulting in the ability to remain well-spoken and presented individual.

Having helped out in some of these activities, it was and still is in hope; that a lot of the residents who were residing in these living conditions did not have the physical means to clean up their homes. For many of us living in high-rise apartments with our parents and children, a lot of us tend to turn a blind eye and only start to care when it begins to affect our living environments. The usual situation is when we start seeing a rise in the number of cockroaches, a bedbug infestation, or the smell of rotting garbage. By then it is too late.

In addition to the community, Sutherland and Macfarlene (2014), touches the inability of psychiatrists to view this as a psychiatric issue and yet psychiatrist are the key individuals that can assess and prescribe appropriate strategies.

Sutherland and Macfarlane (2014) advise that in these situations practitioners really only have 2 options.  To intervene against the wishes of the person in question or do nothing. People could argue that this is highly paternalistic, some may say prescriptive. However, when the situation may pose a risk of harm to the individual and the community living in these high-rise communities, can you really turn your back on the situation?

Some of us may risk inaction out of respect for the individual. We may not want our neighbours to “lose face”, we may want to be polite, to keep the peace or for some of us, we just haven’t had the time to look, and for a minority of us, we may not care.  to contact our local MP or town council for help; we are in fact abandoning these individuals as a society and putting everyone’s lives in jeopardy, their lives and our own. These environments are a huge fire hazard, in addition to the contributing unsanitary conditions when we allow bedbugs, cockroaches and other insects to spawn when we could have acted early and provided the right care for our neighbours and reduce the risk of harm to everyone.

“Our services should act in the best interests of the person where possible while bearing in mind the interests of others. When capacity is in doubt, decisions about intervention may be debatable. It may be easier to do nothing. Recognising our responsibilities, even if they distress us, is necessary. If we find the job impossible, it is important to refer to people or services who can take on the case (Snowdon, 2014, p682).”

These individuals are who may be found with diminished capacity may be able to be managed by services such as home help/care and other community services (Sutherland and Macfarlane, 2014). The researchers also suggest that in extreme cases, guardianship may e necessary. The person could be cared for in a residential home with clinical care such as an aged care home.

In the event that we may have seen such a situation, we should contact our local MP or town council for help. By remaining inactive, we are in fact abandoning these individuals as a society and putting everyone’s lives in jeopardy, their lives and our own. These environments are a huge fire hazard (Pending Road), in addition to the contributing unsanitary conditions when we allow bed bugs, cockroaches and other insects (Eunos Cockroach Infestation) to spawn when we could have acted early and provided the right care for our neighbours and reduce the risk of harm to everyone.

Video posted by Nur’Ashikin Fazlan Zainol on facebook.

By including the safety and lives of others in our daily lives, we include the safety of our family.

 

References:

Lee, S., Lewis, M., Leighton, D., Harris, B., Long, B., & Macfarlane, S. (n.d). Neuropsychological characteristics of people living in squalor. International Psychogeriatrics, 26(5), 837-844.

McDermott, S., Linahan, K., & Squires, B. J. (2009). Older People Living in Squalor: Ethical and Practical Dilemmas. Australian Social Work, 62(2), 245-257.

Snowdon, J., & Halliday, G. (2012). A study of severe domestic squalor: 173 cases referred to an old age psychiatry service. International Psychogeriatrics, 23(2), 308-314.

Snowdon, J., & Halliday, G. (2009). How and when to intervene in cases of severe domestic squalor. International Psychogeriatrics, 21(6), 996-1002.

Snowdon, J. (2014). Severe domestic squalor: Time to sort out the mess. Australian & New Zealand Journal Of Psychiatry, 48(7), 682.

Sutherland, A., & Macfarlane, S. (2014). Domestic squalor: Who should take responsibility?. The Australian And New Zealand Journal Of Psychiatry, 48(7), 690.

 

 

Posted in Ageing & Culture, Caregiving, International Policies, The Built Environment

10 Tips for Communicating with a Person with Dementia 

A really practical and simple article with tips from the Family Caregiver Alliance for staff and caregivers working with people with dementia. The article provides advice on communication and understanding changes in behaviours. With additional information on supporting a person with dementia to manage nutrition, hygiene, and incontinence.

I found the top 10 tips for communication very helpful and made a little facebook post sized image to help share these very practical caregiver tips with friends and colleagues. You can also print it out and pin it on the pinboards at the nurses station.

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These tips are just straightforward and realistic, and transcend the boundaries of culture and language.  I made some changes and replaced the word dementia with cognitive impairment because I thought the nurses on the neuro wards, or even care managers working with people with traumatic brain injuries may also find these tips very handy.

Source: Caregiver’s Guide to Understanding Dementia Behaviors | Family Caregiver Alliance

Posted in Ageing & Culture, International Campaigns, Research & Best Practice, The Built Environment

Australia Online Dementia Support Website

Alzheimer’s Australia Victoria launched an online dementia support website (http://www.helpwithdementia.org.au/) that brings together health services such as counselling, public health education and social programmes for people living with dementia, their families and carers through the web.

Given that 85% of general internet users in Australia utilise the net for communication activities, research and networking, it is only logical that health services for people with dementia and their significant others should extend to the web (Australian Communications and Media Authority 2015).

The great thing about online technology is that everything is literally at your fingertips. Especially for the tech saver person with dementia or caregiver. I know some of the readers are thinking; people who are older adults are not tech savvy. That is not true. 46 percent of older adults in Australia are already internet users (Australian Bureau of Statistics 2014). This platform (http://www.helpwithdementia.org.au/) is a life saver. Face to face services are no doubt great for people who can make the time and effort to travel for a session.

The ease of having services in the comfort of your own home is great. Going for services is really stressful and sometimes people or service providers forget that. There’s the stress of making time to travel, arranging transport, the stress of leaving your loved one alone, the anxiety experienced during the process of travelling, worrying about the cost of travel, taking time off from work or from an important social responsibility (Looking after your grandkids), the list goes on.

There are 50 million and one things to worry about. With an online site, I could be reading or watching about information on dementia sitting on the couch with my loved one or even just in my pyjamas in bed. There’s apparently 16 expert videos available on the site to help people understand about dementia.

There’s counselling that can be done through e-mail or there’s the option of a video conference. Or if you like to keep it casual there’s always the forum where you can hook up with a social network and exchange thoughts and read about people’s experiences on specific topics.

An online support platform is a great idea, and I hope to see more platforms that can cater to the needs of the online community. Youths and children these days are much more connected than I am and perhaps this medium might also be a way to connect to the younger generation to spread the news about having a healthier happier brain. Health prevention campaigns really need to take their heads out of the sand in tech-savvy countries, save the trees and really understand the people. Traditional means of health promotion is important but we also have to embrace the new wave of social media and technology and extend our care into the digital realm.

Source: Home – Alzheimer’s Australia Vic

Posted in Ageing & Culture, Caregiving, International Policies, The Built Environment

Chair Zumba for a sharper mind and body

Found this heartwarming piece of news about a group of women in their 90s living in America, Seattle who come together for Chair Zumba weekly to keep their mind and body active. You can read more about the article below, there’s a video about the ladies and their Chair Zumba classes here http://komonews.com/news/healthworks/music-and-movement-exercise-may-stave-off-dementia.

chair zumba

I’ve also linked a small clip about a Chair Zumba session below.

Do we have a Zumba instructor in Singapore, Taiwan, Hong Kong, Korea, japan or China willing to organise classes? Victoria Lum’s chair Zumba classes certainly looks pretty cool.

Posted in Ageing & Culture, Caregiving, International Policies, The Built Environment

Experience how a person with dementia grapple with complex flooring patterns

This has been going around the web for the last couple of weeks and everyone has been all over it trying to find the panda among the snowman or the cat among the owls. It has been a fun experience for most of us and for some it may be quite frustrating. Some people who are able to find the cat or the panda have posted bragged about how quickly they may have found it on facebook.

We know this happens and we talk about how confusing complex flooring patterns can be for people with dementia. They may not be able to distinguish the area and may have difficulties walking around. Imagine if you had dropped your keys on the floor or a purse on a carpet

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It would be like looking for the animals in these pictures. See if you can find the panda in the first picture and the cat in the second. .

1. Find the Panda above in the midst of the snowman.

2. Find the cat in the sea of owls.

Images created by Gergely “Dudolf” Dudás and more images can be found on Dudolph’s Facebook page.

Researchers are still trying to work out how the brain tries to categorise objects. The latest breakthrough came from Monash University where researchers are trying to utilise a new imaging technique known as the semantic wavelet-induced frequency-tagging (SWIFT) to help us find the answers (Koenig-Robert et al. 2015).

If you are caring for someone with dementia or working with people with dementia, please stop and have a think about the type of flooring and perhaps these principles from  Prof. Richard Fleming and Kirsty Bennett, University of Wollongong might come in really handy in the decision making process.

  • Reduces unhelpful stimulation
  • Optimise helpful stimulation
  • Support movement and engagement

Just trying to find the panda and the cat may be somewhat easy or really quite frustrating for some. It will take a couple of seconds at least and that is the situation that that people experiecing cognitive impairment have to grapple with when they come up against environments of complex designs. We have to take our current experience with hunting for the panda or cat and multiply that by ten or even a hundred folds. So before you choose that intricately design carpet for your flooring, please stop and think if the choice you are making is an inclusive one for people with dementia.

References:

Fleming R, Bowles J. Units for the confused and disturbed elderly: Development, Design, Programmimg and Evaluation. Australian Journal on Ageing. 1987 November;6(4):25-8.

Fleming R, Forbes I, Bennett K. Adapting the ward for people with dementia. Sydney: NSW Department of Health; 2003.

Koenig-Robert R, VanRullen R, Tsuchiya N (2015) Semantic Wavelet-Induced Frequency-Tagging (SWIFT) Periodically Activates Category Selective Areas While Steadily Activating Early Visual Areas. PLoS ONE 10(12): e0144858.