The Lantern Project Australia, founded by Cherie Hugo, is about giving aged care residents the quality of life they deserve through good food and nutrition.
Source: The Lantern Project Australia
The Lantern Project Australia, founded by Cherie Hugo, is about giving aged care residents the quality of life they deserve through good food and nutrition.
Source: The Lantern Project Australia
There are 23 million people living with dementia in the Asia Pacific Region in 2015, costing the region a whopping US$185 billion. Little education exists on dementia for our children aside from countries such Australia, Japan, with some children attaining information in countries such as Korea, Singapore, Taiwan and China. However, there is nothing in the national curriculums to prepare children for Dementia or help children to fully understand the need of dementia inclusive enabling communities or the preventative measures required for them to put in place at a young age to reduce their risk of dementia especially those brought about by lifestyle factors.
Ireland with slightly less than half the number of people living with dementia at approximately 20,000 people, and a population of 1.8 million and a land mass of 14,130 km2. Alzheimer’s Society reported that at least 30% of the young will know a person living with dementia. Last Wednesday it was announced on the Alzheimer’s Society website that Alzheimer’s Society and the Council for the Curriculum, Examinations and Assessment have included dementia in the school syllabus, making Northern Ireland the first to have a dementia friendly generation.
The resources are also available not just in English but also in the Irish language. Click here to view resources.
PRIMARY SCHOOL: The Archie Project from Reminiscence Learning has created a unique and innovative intergenerational awareness project to reduce the stigma associated with dementia. They believe that by engaging with young children they are dispelling the fear of dementia and changing the attitudes of our workforce for the future, providing education to support early diagnosis. Archie’s Story follows a scarecrow with dementia on his journey from exclusion to inclusion. The accompanying Archie workbook goes on to help children understand how Archie’s state of wellbeing improves by being understood, loved and included — a simple concept but one that both children and adults can relate to. The Archie Project provide books, workbooks, assemblies, scarecrow parades, Archie-related activities, training, drama and recognisable merchandise so that everyone can connect with the Archie character and learn how to engage with people with dementia in their families and communities. Links between schools and care homes enable children to put their new dementia awareness into practice. By increasing their knowledge of dementia, the project gives them confidence to interact with residents during visits to local care homes, where they take part in shared activities such as singing, gardening activities, coffee mornings, shared lunches, snooker, craft activities, tea dances and storytelling. Archie mascots encourage conversation and engagement with people at all stages of dementia. For more information visit www.reminiscencelearning.co.uk/archie (Source Alz Soc Youtube)
The promotion of dementia awareness not only helps us to create a better multi-generational dementia inclusive society but for our children, it will help them better understand the need for education and the impacts of negative lifestyle choices. A study based on a Comparison of the Prevalence of Dementia in the United States in 2000 and 2012 published in JAMA internal Medicine on the 21st November indicated that education appears to be a protector against dementia. Dr Kenneth Langa theorises that education “actually creates more, and more complicated, connections between the nerve cells so that you’re able to keep thinking normally later into life.”
In addition, Director of the Division of Behavioral and Social Research in the National Institute on Aging, John Haaga adds that “Education can not only change the brain, it can change your whole life… It affects what kind of work you do, of course. It also affects who your friends are, who you’re married to, whether you’re married. All aspects of life are affected by educational attainment.”
When children learn about dementia and the brain, they will also learn about the risk factors which will help them to adhere to healthier lifestyle choices. According to Dr Alina Cohen, “factors such as adhering to a healthy lifestyle including a diet that is rich in essential nutrients, regular exercise engagement, and having an adequate cardiovascular profile all seem to be effective ways by which to preserve cognitive function and delay cognitive decline.” This study by York University presented evidence that the delay of dementia is connected with healthy living which in turn aids higher brain function. On a whole, our children will understand the importance of education, strategies to building cognitive resilience and understand the need for a healthy lifestyle for a healthy brain. There are a whole lot more pros than cons in this picture and policy makers should really sit up and start using their brains to look at how this can be implemented. Students will be able to understand the effects of stress on the brain, the importance of prevention and help-seeking behaviours especially in the areas of anxiety and depression. On a systemic level, this will create not only a friendlier, integrated and healthier multi-generational society but one that in the future may potentially see a reduction in healthcare spending as a result of unhealthy lifestyle choices.
SECONDARY SCHOOL: In the summer of 2012, Stoke Damerel Community College was invited to become one of 21 Pioneer Schools as part of the Prime Minister’s Challenge on Dementia. The school took a unique approach to dementia education, placing it across the curriculum into as many subjects as possible and endeavouring to work in partnership with their community and local and national organisations. They placed emphasis on creative processes and outcomes, intergenerational contact and active learning. Subject leaders were actively engaged in determining the shape of dementia education in their own subjects. Some of the most successful projects at the school were those that involved creative ways of working and intergenerational activities. For example, as part of the PE curriculum, people with dementia visited the school to play croquet with year 7 students. For more information visit http://www.sdcc.net (Source Alz Soc Youtube)
In addition to Primary and Secondary school, Scout groups have also joined the cause On such program is A Million Hands a program that supports 4 main social issues, dementia being one of the four that have been selected by the young. The objective is to empower and enable the young and the youths to tackle these issues head on and have the courage to make a change. In the areas of dementia, Scouts may find themselves helping people with dementia to fight isolation or helping with awareness by teaching people to spot signs and symptoms of dementia.They may work to try and work to make communities more accessible and even work to campaign for a cure and improve the lives of people with dementia.
Dementia as part of the educational curriculum could well be a means to improve not just the future of our children but perhaps the society as a whole.
Building a dignified system where Singaporeans can choose how we want to live and how we want to say goodbye
The loss of freedom, dignity and respect in places with 11 to 25 bedded wards, lacking in privacy, with staff being paid SGD$350 a month without food and accommodation were reported in a Channel NewsAsia program known as Talking Point. In addition, it was also mentioned by author and research Ms Radha Basu one staff member can be observed responsible for 20 to 32 residents in the night, and residents live with bare necessities such as a toothbrush, bed and a cabinet. The lifestyle was found to be highly regimented with the journalist sharing that there are were only 2 options for times for showers at 6 am or 7 am. “it was like a hospital for the rest of your life” stated television host Anita Kapoor. She also states that “it’s not a criticism of the facilities themselves, it’s a criticism of the system. You cannot approach eldercare the way you approach hospital visits. It can’t just be a means to an end need. It is a life. You have to think in terms of life and end of life.”
– television host, Anita Kapoor, 45 years of age.
I applaud Ms Kapoor for taking a stand and putting herself in the resident’s place, experiencing the environment literally for a fortnight first hand, living as residents lived.
Like my previous article about Singapore nursing homes, our story of the wooden bowl? I questioned how we want to care for our older adults, our parents, our grandparents, given the state of the nursing homes in Singapore. How do we care for our loved ones in Singapore with dementia without dementia enabling built environments?
My thoughts have constantly been being echoed in this programme. Pushing for better environments for people with dementia. I dare to say that I can dream for a day when Singapore will be able to have facilities that advocate for independence, dignity and respect for residents. Seeing an assisted living facility in the heart of Bukit Timah, it’s heartwarming and inspiring to see the St Bernadette Lifestyle village, assisted living facility that is just like a home.
It is with a flicker of hope that one day we can have facilities like intergenerational nursing homes inspired from our HDB designs (Taking a leaf from HDB flats for Pocket Gardens & Intergenerational Nursing Homes) which we call home.
In the meantime, I will keep working on a dementia enabling environmental audit tool for Singapore in the hope that we will be able to create dementia enabling long-term care facilities that Singaporeans can call home.
Watch the full episode here http://video.toggle.sg/en/series/talking-point-2016/ep24/458260
Below is a great a great piece by Prof June Andrews republished free, online or in print, under Creative Commons licence.
People with dementia go into emergency hospitals more often than the rest of the population even though these hospitals are run as if every patient has perfect intellectual function. An acute hospital is like a meat grinder for people with dementia – it chews them up and spits them out – so it is worth both avoiding admission in the first place, and learning how to support someone if admission is really necessary.
Your local hospital might be prepared to welcome people with dementia but you can’t be sure. Its management would be wise to do so, as up to 50% of patients, on top of their illness or injury, may be elderly and frail and affected by either dementia or delirium. Delirium is a reversible state of confusion caused by stress and infection. If staff work to reduce delirium, it almost certainly also helps reduce problems associated with dementia.
How we regard hospitals has developed over time. What was a costly amenity for our great-grandparents is now understood as a regular service. A building that was once viewed with dread because so many people died there is now seen as a desirable place to get treated. People battle against local hospital closures. They attend accident and emergency (A&E) in preference to going to see the GP, as if the hospital was superior.
But if old people with dementia can stay out of hospital, it’s much better. Of course, some things can’t be managed outside a hospital but for many, getting admitted is the top of a slippery slope. They may have been managing perfectly well at home, but during their hospital stay things happen that mean they never go home again.
Dementia patients are twice as likely to suffer preventable complications such as pressure ulcers and pneumonia in hospital. Patients with dementia and a fractured hip tend not to be given as much pain relief as other patients with fractured hip. Uncontrolled pain in dementia gives rise to delirium that is often undiagnosed and untreated in hospitals. As a result, half of these patients who develop delirium die in six months.
Research shows that if you have dementia you will stay in hospital longer than other people with the same clinical problem. People frequently say that after admission it was discovered that they had not been coping at home. But in fact, it may be the opposite. A person who does not get enough to eat in hospital may have been eating adequately at home. The person coping on their own with washing and going to the toilet in a familiar home environment may not be able to negotiate the confusion of the ward and start to wet themselves and be unable to keep themselves clean.
Someone who managed to be happy and live quietly at home, sleeping at night and entertaining themselves by day, will be kept awake by noise and light at night, and bored rigid in the daytime, never even seeing daylight. Getting the lighting right can prevent major dementia symptoms such as mood swings, sleep problems, and behavioural issues.
Then when they become noisy and irritable they may be given dangerous anti-psychotic medication in the first instance to quieten them down. It is not unusual after this to have a fall or a fracture, causing a longer period in hospital during which patients can then develop depression and delirium, leading to early death.
This is a terrible human story. And it’s terrible financially too. Staying longer in hospital than others with the same condition makes for a greater tax burden and causes waiting lists. Social services are under pressure now to find care home places for people, when what they had before was a semi-independent person who mainly looked after themselves with a bit of home care. The family, if there is one, and the estate of the person now face the probability of having their assets stripped to pay for a situation that may have been avoidable or at least delayed for months and years.
Logically families should take more responsibility for care of elderly relatives while in a hospital. Be there to help them eat, and to help them with washing, keeping them company and making sure that they swallow their medication.
But hospital staff resist it. For political reasons the NHS has difficulty accepting a situation like this for fear of accusations that the system is failing. Just recommending help from families has in the past been misrepresented in the media or by politicians as an attack on the NHS.
This is because we have been led to believe an unreal fantasy of what hospitals can do. Recommending that families help is not a criticism but a practical response. If families support the frail person in hospital, it helps the nurses, reduces delayed discharges, saves money and maintains the dignity of the patient. Everyone wins. We must all do it out of enlightened self-interest to allow the system to focus on patients who have no-one and nothing.
The alternative is that we assume hospitals can do everything we expect for an ageing and increasingly frail patient group. That in itself is enough to lead to system failure, because we ask too much of them.
CNN (Source: Geriatric ERs reduce stress, risks for older patients – CNN.com) recently touched on the need for Geriatric emergency rooms (ER) that can provide seniors with better care. According to the world bank, in 2010 there were 211 million older adults 65 years and above in East Asia and even in a little island in Singapore, by 2020, 1 in 5 Singaporean will be an older Adult. We have hospitals for children across Asia, isn’t it about time we started having at least an ER for older adults? Wouldn’t this not only be beneficial to the patient and their family but beneficial to the outputs in terms of care and the cost to the system as well. We all know that hospitals are detrimental environments for older adults and especially so for people with dementia.
We also know the benefits for the patient if we improve the acute environment and the care provided, but there are also wider benefits for society and especially for the family. With dependency ratios increasing in Asia and higher life expectancy rates, think China, with 1.3 billion people and a 4,2,1 family structure. With 4 grandparents, a couple, and their child, and now with the removal of the one-child policy, you may have 2 children in the family. If an older adult has been admitted into the emergency room the stressors on the family, especially the working adult will be incredible. Anyone who is a parent and are caring for parents will know this. This is not inclusive of the 30 million bachelors in China who will be the sole caregiver of their parents. How can we have an effective workforce if there is a constant worry that our parents are not getting adequate medical care in hospitals, on top of juggling work, kids and worrying about the health of 3 other older adults in the family? As a child you can’t not worry about your parents especially when it involves the ER, it’s only natural. A parent going to the ER is possibly one of the scariest thing a child can experience. On top of that, there are the worries about the out of pocket cost for care. The least we could get really is a decent healthcare system that can help care for older adults, and a geriatric ER will be a good start. In a Geriatric ER at least we know our parents are getting the right care from the start and in the right environment, that in itself will be a great relief from the get go.
We’ve all heard of the Chinese proverb:
“The superior doctor prevents sickness; The mediocre doctor attends to impending sickness; The inferior doctor treats actual sickness”.
A cultural change in care requires collaboration and evidence, and the success of early intervention will reduce the operational and financial strain on the health and social care system. Isn’t it time, for the hospitals in Asia that can make a change start doing something about it and adopt a salutogenic approach to care? Isn’t it time we start taking our own advice?
A simple and easy to understand video about circadian rhythms from the Oxford University. Over the years I have heard numerous discussions about the need for artificial lights and the needs for better lighting to aid the sleep process for people with dementia. However, do we actually know how, why and what light does to impacts our sleep patterns? This video provides an engaging and interactive way for us to all understand how it all comes together.
My key takeaway from the video is that natural light helps to keep us awake and maintain our sleep-wake cycle and natural light sources is by far the brightest light source around. 🙂
The transcript can be found below.
Published on 9 Nov 2015
How do you know when it’s time to wake up or go to sleep? More powerful than any alarm are your circadian rhythms. In this animation we take a look at how these rhythms work and what controls them, inspired by the TeenSleep project being carried out at the University to look at how later start times at school might affect achievement.
How does our body know when it’s time to sleep?
Humans detect light through the eye. Light enters the eye and is focused onto the retina at the back of eye. The retina contains photoreceptive cells that detect light and send this information to the brain, via the optic nerve. The most obvious outcome of this process is the ability to form images; to see. Image-forming vision depends upon rod and cone photoreceptors, which are critical for low light vision and bright light colour vision, respectively. However, it was discovered in 1999 that the circadian system of animals lacking rods and cones could still respond to light. This led to the discovery of a new class of photoreceptive cells: the photo-sensitive retinal ganglion cells (pRGCs), which express the light sensitive pigment melanopsin. These pigments undergo a chemical reaction when they absorb light, which causes the ganglion nerve cells to fire signals to the brain.
These signals from the melanopsin pRGCs feed directly into the Suprachiasmatic Nuclei (SCN). These are cells in the hypothalamus, near the base of the brain, which contains the master circadian clock (or pacemaker). The SCN orchestrates our circadian processes, to make sure that systems throughout our bodies are working together, in time. This system is also involved in controlling our sleep-wake cycle. As the level of light gradually decreases at the start of the night we produce increasing levels of a hormone called melatonin. Melatonin plays a vital role in our day-night cycles, acting as an internal signal of night time.
Why is being exposed to light at the wrong time so bad?
If we are exposed to light at the wrong time, say because we work night shifts, this confuses our system. Light supresses the production of melatonin, and promotes wakefulness. We delay our sleep and other circadian and sleep-dependent processes. We can work nightshifts for years and our circadian system will not adapt to our new sleep-wake cycle – primarily because we are exposed to natural light during the day, which is far brighter than artificial light sources. This leads to a whole host of problems. Working through the night means we are working when our bodies are craving sleep.
Is it different for teenagers?
The reason we are so interested in sleep during adolescence is because our circadian rhythms change during this period. From the age of 10 until around 21 our circadian rhythms delay. This means that as we go through adolescence and into early adulthood we are naturally more inclined to go to bed later and also to get up later. This is a biological process, and will happen to teenagers regardless of their environment.
Asking an adolescent to get up at 07:00 to start school at 09:00 is akin to asking a 55-year-old to get up at 05:00: this leads adolescence to accumulate a significant amount of sleep deprivation. The circadian drive isn’t optimised for wakefulness and engagement until around10:00.This means that adolescents are typically starting school at a time when they are feeling the effects of sleep deprivation and when their natural rhythms are not optimised for alertness, and therefore learning. There have been a whole host of studies, mostly from the US showing that a delay in the school start time improves sleep, mood, well-being, alertness and academic outcomes with one study suggesting that a delay in the school start time is more effective than improving the quality of the teaching.
Whilst timing of sleep (and activity) is important, so too is understanding what other factors might affect the quality of your sleep. Not only do adolescents have a natural biological predisposition to staying up later, but the devices they use to communicate and for entertainment may also impact sleep. TV screens, tablets and phones emit light at a level which may interfere with sleep onset, compounding the effects of the naturally occurring circadian delay. A recent study has suggested that teenagers may be particularly susceptible to the effects of light emitting deceives. Students are also dealing with the stress of exams and the pressure to perform well. The TEENSLEEP study aims to address some of these issues by looking at the effect of sleep education and delaying the start time of teaching on sleep quality and academic outcomes.
This is pretty amazing, a models of care from an organisation providing care in Japan. This is just incredible, it’s just so simple and functional.
At first glance, it looks confusing, like what? 4 big zeros? Zero wheelchairs? What does that mean? That the organisation don’t provide wheelchairs?
image from http://www.sompocare-next.jp/
4 zero is a really outstanding care philosophy, to ensure that the organisation work towards the physiological and mental health of the resident to ensure that their independence, dignity and autonomy is maintained as long as possible. So much so that until the end of days they will never have to live with diapers, assisted baths, tube feeding or wheelchairs.
1. Zero Diapers/pads
2. Zero Special baths
3. Zero Tube feeds
4. Zero Wheelchairs
That really sums up the care that we need to provide to ensure that the people with dementia have a great quality of life. Too often we take it for granted that it’s okay for people to wear diapers/pads, to have assisted baths, to be on feed tubes and to grow old is to literally lose your mobility. Be it a home care service, residential aged care, or in acute care, that’s what we all should be aiming to help everyone live better. To ensure that people living with dementia can live healthy, respected and meaningful lives without the added pain, humiliation and anguish that we so flippantly systematically introduce into their lives.
Residents have told me that they are uncomfortable, humiliating, and some have even felt the need to become reclusive, as they are conscious that their pads or diapers may smell. This is awful for a person’s well-being. Living with dementia, it’s stressful enough to ensure that each day is lived to it’s fullest, to remember to do the things that they need to do. On top of that having to wear, change and walk around with a diaper or pad, really is one of the last things anyone really needs. Zero Diapers/Pads!
As a child, can you remember getting your body scrubbed and being twirled around to be mopped up in the shower. Like a military exercise, the shower never comes on when you want it and it’s always too hot or too cold. Think of the dances that you did and the anxiety it brings trying to avoid that first blast of water. The pelting of water smacking into your face when you least expected it. Lots of scrubbing and before you know it, it’s all done and you are bundled out faster a bag of groceries at the supermarket at lunch time.
Some people rally appreciated their showers, they sing in the shower, play with the foam in their hair in the shower, and just sometimes after a long day which feels like the end of the world, they may just stand in the shower with the water streaming down on me in silence. Just listening to the sound of the water, enjoying the calming warmth in serenity, it’s much needed especially after a rough day.
Having assisted baths are just not the same, and for anyone who has showered a resident. Residents have mentioned that they don’t care anymore and for some it is frustrating and they get annoyed especially if they get a different person helping them with their shower that they may not be familiar with, and rightly so. Imagine having a stranger seeing you naked or scrubbing you, or standing in the room watching you while you try and enjoy a warm shower. We should try and help people to maintain their independence and mobility as long as we possibly can, so that for everyone who enjoys a nice hot shower by themselves in private, they can keep rocking on. Zero Special/Assisted Baths!
Imagine never being able to eat. Food is the breath of life, from the moment of birth we taste the sweetest of milk, we lick the salt off the palm of our sweaty little hands and as we grow, continue to enjoy the luxurious experience of having a meal. We open our auditory perception to the vibrators around us, to the sound of chewing in our mouths, the crackle and pops, the slurping, chomping of meat and vegetables, the crunching of chips. We open our senses to a world of gustatory perception, from the sweetness of honey to the heat of the beloved bird’s eye chillis from Southeast Asia. Our 5000 taste buds activating their 100 taste receptor cells, kicking themselves into action, working hard to make each meal an adventure (Siverthorn 2007). When the odorant molecules creep towards us and bind themselves to our olfactory receptors, we can’t help but take in the information that these little molecules have given us and up the glomerulus, the information is sent, right into our olfactory bulb that helps us make sense of the delight close by. They say we eat with our eyes, and watching chefs like Jamie Oliver put together a feast before us, some say it’s almost as good as having the meal in itself. Let’s not even talk about the tactioception, the spring of a baked muffin out of the oven or themoception, the cold of a vanilla ice cream, or the warmth of Ramen on a winter’s afternoon.
Kuraoka & Nakayama (2014) stated that common causes of issues that might require percutaneous endoscopic gastrostomy (PEG) where a tube runs pass the mouth and through the adomon to deliver contents the stomache include;
Research (Taylor et al 1992), found that up to 70% of people with PEG will encounter complications ranging from minor to severe with survival probibility of 1.5 years to 4 years after referrel. Increased risk of death was also stated in the study and it was stated that individuals with people with low risk of survival will not benefit from having a PEG. A multitude of ethical issues that arise from PEG includes the stress and frustration that caregivers feel to have to make decisions regarding their loved ones being on PEG and most of these decision-making procession may only range for a few minutes, forcing caregivers to make an on the spot decision regarding this critical issue (Kuraoka & Nakayama 2014).
We should do our best to keep older adults, happy, healthy and independent and not flippantly take the important issues for granted and have people live with PEG feeding tubes/Nasal Gastric (NG) tubes. Zero Tube Feeds!
The last of all is a big issue and a lot of people grapple with nurses and caregivers alike. We are all afraid of our loved ones and residents falling, in Asia we are also attuned to over caring and being time poor it’s a lot easier for us to do things for others then to allow them to do it themselves with our assistance. We pride efficiency and timeliness at the cost of the independence for others. This however is not fully attributed to staff, Residents, families and clients have to be aware of these issues as well. They have to be aware of the issues that are tied to muscle atropher or disuse atrophy which occurs from loss of physical activity. It’s not uncommon to see a person after recovering from a fall, filled with intense anxiety and grappled with fear that they literally wake up, sit in a wheel chair and never find the strength to be mobile again. Some nursing staff may also have encountered residents who on top of not wanting to walk, insist on being pushed around in a wheelchair. Residents feel that they pay for their care and therefore they should be wheeled everywhere and should not lose out, as caregivers and families, do they realise that the emphasis on the dollar is impacting their cognitive and physical health resulting in their loss of movement?
Just the basic movement of walking, in the part to the bus shelter, getting up to grab a drink result in the activation of different muscle synergies and motor corticol regions in our brain. Each movement that we take for granted and carry out with ease sets off a blaze of neurons. Imagine walking in the garden or a park, feeling the sun on your face or the breeze, or the heat and humidity working up a sweat. We are surrounded by a constant ball of experiences, though little they make up a whole of how we conprehend and understand our bodies, mind and the environment around us. The simple things in life are lessons in itself. We know (Ahlskog 2011) that physical exercise is a critial cost-effective preventative element against dementia and brain aging, so why are organisations strapping their clients down and paying for programmes which may not have adequate evidence base in the preventative treatment of dementia and brain ageing?
We should be working towards enhancing, enabling and empowering people to be healthy and fit, to help them maintain their independence, autonomy and mobility in an inclusive environment. Zero Wheelchairs!
We have the obligations to provide good care for the people around us, to maintain a sense of harmony and homeostatis to keep our inclusive and complex society moving. Putting the needs of fulfilling black and white key performance indicators that provide quantitative information without any qualitative outcome for the people we are meant to care for is no outcome at all. What does it mean to give a part of ourselves and our time to pursure the more important and meaningful things in life and not just keeping up the numbers. Unlike the West, we were brought up with values that put the needs of society before our own, and we need to remember that and not pursue our own needs at all cost for our own brighter future at the risk of poorer health outcome for others.
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Other sources: 私たちの特長 | SOMPOケアネクストの有料老人ホーム・介護施設
Disclaimer: Just to be clear the blogger does not work or receive any funding from the company or organization in this article.